Resources and Links

Here you will find resources for parents and professionals, including parent-to-parent support and professional resources, preemie clothing sites, and books/films.

This is by no means an exhaustive list, and most sites have resource lists tucked into their offerings (you can get lost in here). The good news is that there’s a lot of support available!

Please keep in mind that each NICU, each family, and each baby is UNIQUE.

We welcome suggestions to add to this list

email us

 

 

read more about neonatal intensive care

 

 


PROFESSIONAL SUPPORT

 

Premature-Infant.com

A resource for preemie parents and professionals, written by Dianne Maroney, a neonatal intensive care nurse, mother of a premature infant, and co-author ofYour Premature Baby and Child: Helpful Answers and Advice for Parents.

The March of Dimes

Dedicated to improving the health of babies by reducing birth defects, premature births, and infant mortality. Resource Center Available: 1-800-663-4637, askus@marchofdimes.com

A trained health information specialist will give you the information you need on preconception, pregnancy health and nutrition, newborn screening, complications and risks, and many other topics.

National Center for Education in Maternal and Child Health

A wealth of publications, resources, and links, as well as access to the National Maternal & Child Health Library at Georgetown University

Institute for Family Centered Care – non-profit organization that provides essential leadership to advance the understanding and practice of family-centered care.

Neonatology on the Web

A “don’t miss” medical site with lots of resources of interest to medical professionals and parents

National Library of Medicine (Medline)

Searches medical journals and other related databases.

National Perinatal Association

A multidisciplinary association of professionals and organizations concerned with perinatal health issues from preconception through infancy.

National Perinatal Information Center

A private, non-profit organization dedicated to research and analysis.

National Association of Neonatal Nurses

National organization that supports and promotes neonatal nursing.

 

PARENT-TO-PARENT SUPPORT

 

Preemie-L Discussion Group

Active discussion forum for parents of premature babies, a great place to exchange ideas, information, and experiences. Also contains an archive of messages and excellent links for parents.

Support for Parents of MicroPreemies

Support and extensive resource links for parents of the littlest ones, run by the mom of three preemies.

Inspiration from a mother of preemie twins.

Be inspired by this website and blog by a mother of 24-week preemie twins, profiled on ABC News. Wonderful interactive site.

Tommy’s CyberNursery / Preemie Web: Daddy’s Links Library

A veritable cornucopia of links for both parents and professionals, including sites related to parenting issues, pregnancy, prematurity, perinatal loss, preemie clothing, and specific conditions. Also has links to journal articles and books. A fantastic resource!

 

GENERAL INFO

 

Developmental Milestones

Developmental Milestones from the CDC – talk to your pediatrician about adjusting for premature infants

Basics of Baby Sleep Training

There are several things that parents can do to set the stage for sleep training success. Parents may want to consider these ideas to help get ready for sleep training.

Caring Bridge

Free websites so you can update friends and family in one central place.  A great resource!

Baby Names! (and other Baby Stuff)

Large free baby names directory. Updated on a constant basis, 70,000+ baby names for you to choose from. Also a dedicated baby search engine and free pdf ebooks to download.

Kangaroo Mother Care

Dedicated to the promotion and practice of kangaroo care, as well as other prematurity-related issues (for dads too!)

Premature Baby-Premature Child

Comprehensive site offering parent support for preemie special needs. Books, research articles, products, email support.

Cord Blood Banking

Find out more about cord blood, life-saving stem cell treatments and what these advances in regenerative therapy mean for your family.  

Cerebral Palsy

Cerebral Palsy Guidance is a comprehensive advocacy and support website providing parents of children with CP access reliable information on a very complex condition.

A Place to Remember

For those who have been touched by a crisis in pregnancy or the death of a baby.

 

CLOTHES FOR LITTLE ONES (AND OTHER STUFF)

Avababy’s

Specializing in clothing and accessories for preemies, with a huge selection.  Run by the grandmother of 2 preemies!

Itty Bitty Bundles

Selection of tiny preemie clothes and preemie baby shoes for those extra tiny toes.

Nurture Place

Huge selection of preemie clothes at Super Outlet Prices for all preemie sizes

Perfectly Preemie

Covering the clothing needs of preemies in great big ways!

The Preemie Store

Premature infant apparel and products

Zutano

Clothing for newborns, including a preemie section

 

RECOMMENDED BOOKS & FILMS

(most available at Amazon or Barnes & Noble)

Born Too Soon: The Story of Emily, Our Premature Baby  by Elizabeth Mehren

Growing Sophia: The Story of a Premature Birth  by Rochelle Barsuhn

Parenting Your Premature Baby and Child: The Emotional Journey  by Deborah L. Davis & Mara Tesler Stein

Your Premature Baby and Child: Helpful Answers and Advice for Parents  by Dianne Maroney, RN.  Available at www.premature-infant.com/Book.html

 Newborn intensive care: What Every Parent Needs to Know  by Jeanette Zaichkin

 Preemies: The Essential Guide for Parents of Premature Babies  by Dana Wechsler Linden, Emma Trenti Paroli, and Mia Wechsler Doron M.D

 Kangaroo Care: The Best You Can Do to Help Your Preterm Infant   by Susan M. Ludington-Hoe and Susan K. Golant

 

Film: Little Man www.littlemanthemovie.com

A documentary film by Nicole Conn.  Heart-wrenching and heart-opening story of Nicholas, born 100 days early.