Resources and Links
Here you will find resources for parents and professionals, including parent-to-parent support and professional resources, preemie clothing sites, and books/films.
This is by no means an exhaustive list, and most sites have resource lists tucked into their offerings (you can get lost in here). The good news is that there’s a lot of support available!
Please keep in mind that each NICU, each family, and each baby is UNIQUE.
We welcome suggestions to add to this listemail us
read more about neonatal intensive care
A resource for preemie parents and professionals, written by Dianne Maroney, a neonatal intensive care nurse, mother of a premature infant, and co-author ofYour Premature Baby and Child: Helpful Answers and Advice for Parents.
Dedicated to improving the health of babies by reducing birth defects, premature births, and infant mortality. Resource Center Available: 1-800-663-4637, firstname.lastname@example.org
A trained health information specialist will give you the information you need on preconception, pregnancy health and nutrition, newborn screening, complications and risks, and many other topics.
A wealth of publications, resources, and links, as well as access to the National Maternal & Child Health Library at Georgetown University
Institute for Family Centered Care – non-profit organization that provides essential leadership to advance the understanding and practice of family-centered care.
A “don’t miss” medical site with lots of resources of interest to medical professionals and parents
National Library of Medicine (Medline)
Searches medical journals and other related databases.
A multidisciplinary association of professionals and organizations concerned with perinatal health issues from preconception through infancy.
A private, non-profit organization dedicated to research and analysis.
National organization that supports and promotes neonatal nursing.
Active discussion forum for parents of premature babies, a great place to exchange ideas, information, and experiences. Also contains an archive of messages and excellent links for parents.
Support and extensive resource links for parents of the littlest ones, run by the mom of three preemies.
Be inspired by this website and blog by a mother of 24-week preemie twins, profiled on ABC News. Wonderful interactive site.
A veritable cornucopia of links for both parents and professionals, including sites related to parenting issues, pregnancy, prematurity, perinatal loss, preemie clothing, and specific conditions. Also has links to journal articles and books. A fantastic resource!
Developmental Milestones from the CDC – talk to your pediatrician about adjusting for premature infants
There are several things that parents can do to set the stage for sleep training success. Parents may want to consider these ideas to help get ready for sleep training.
Free websites so you can update friends and family in one central place. A great resource!
Baby Names! (and other Baby Stuff)
Large free baby names directory. Updated on a constant basis, 70,000+ baby names for you to choose from. Also a dedicated baby search engine and free pdf ebooks to download.
Dedicated to the promotion and practice of kangaroo care, as well as other prematurity-related issues (for dads too!)
Comprehensive site offering parent support for preemie special needs. Books, research articles, products, email support.
Find out more about cord blood, life-saving stem cell treatments and what these advances in regenerative therapy mean for your family.
Cerebral Palsy Guidance is a comprehensive advocacy and support website providing parents of children with CP access reliable information on a very complex condition.
For those who have been touched by a crisis in pregnancy or the death of a baby.
CLOTHES FOR LITTLE ONES (AND OTHER STUFF)
Specializing in clothing and accessories for preemies, with a huge selection. Run by the grandmother of 2 preemies!
Selection of tiny preemie clothes and preemie baby shoes for those extra tiny toes.
Huge selection of preemie clothes at Super Outlet Prices for all preemie sizes
Covering the clothing needs of preemies in great big ways!
Premature infant apparel and products
Clothing for newborns, including a preemie section
RECOMMENDED BOOKS & FILMS
Born Too Soon: The Story of Emily, Our Premature Baby by Elizabeth Mehren
Growing Sophia: The Story of a Premature Birth by Rochelle Barsuhn
Parenting Your Premature Baby and Child: The Emotional Journey by Deborah L. Davis & Mara Tesler Stein
Your Premature Baby and Child: Helpful Answers and Advice for Parents by Dianne Maroney, RN. Available at www.premature-infant.com/Book.html
Newborn intensive care: What Every Parent Needs to Know by Jeanette Zaichkin
Preemies: The Essential Guide for Parents of Premature Babies by Dana Wechsler Linden, Emma Trenti Paroli, and Mia Wechsler Doron M.D
Kangaroo Care: The Best You Can Do to Help Your Preterm Infant by Susan M. Ludington-Hoe and Susan K. Golant
Film: Little Man www.littlemanthemovie.com
A documentary film by Nicole Conn. Heart-wrenching and heart-opening story of Nicholas, born 100 days early.